Battling MS: Fuel Update

[Fuel]

Hey gang, I haven't been around much and this will probably continue for a bit longer.

Try to make this brief, since typing is a challange.

April 14, had a massive attack, migraine? Walking, writing and reading were near impossible. This improved by 21st. April 23rd, another attack time for an ER visit. I can walk, read, but typing is a challange. The left side of my body is numb, waiting to hear from my doc.... trying to sched an MRI.

See you around, hopefully within days not weeks or months.
~Sam

[tcroom129]

Sorry to hear this Fuel! Hope things get better quickly!

[frawniemae]

OMG Fuel! I hope everything is going to be okay. Please keep us posted and know that you are in our prayers.:hug2:

[Sheisback]

:( So sorry Fuel !

I hope they find whats wrong and can cure you SOON !

Good luck :)

[Roo94]

I'm so sorry to hear that Fuel! Take it easy - I hope they can find out what's wrong and fix it quickly!

I'll be thinking about you - keep us posted!

Roo

[spf15]

Ouch!!!! Hope you are better soon.

[Gabby]

More info:

(I hope this is correct) Fuel was originally diagnosed as having a sinus infection, but obviously it isn't the cause (or hasn't been cured by anti-biotics)

Hang in there!

[Reset]

Get better soon Fuel! If you need any local (Mt Holly) help, pm me.

[cheddar]

Fuel, I so hope they can find out the problem and help you feel better soon!

[AvecLion]

Fuel, here's hoping they find out what's wrong and fix it ASAP. We'll be thinking of you - take care!

[sarah711]

Aww!!! Poor Fuel ...I hope everything turns out okay... and you get better QUICK.. take care....we will miss you

[Punkin]

Virtual hugs and kisses, Fuel! :lovey: The uncertainty of what's going on with your only body must be maddening! Hope you are diagnosed and treated back to health very soon.

[Jac-Kuch-ie]

:hug2: Get better soon!

[LeeLee]

I hope you are feeling better soon.

LL

[An-g_BB]

Fuel- Take it easy ok! I miss ya around but want you to feel better asap!!

[pocket]

How frightening, Fuel! I hope they discover soon what the cause is, so they can get some treatment started. Hugs and prayers coming your way from SE Texas.

[Slitter]

Wow, Fuel. I'm very sorry this is happening. I hope they can quickly put a name to it and then very quickly get you what you need to take care of it. Positive thoughts and prayers coming from here too. I hope we hear good news from you soon. :hug2:

[Kramer]

Sam, Im so sorry to hear that you are feeling so bad :( I hope that you can get into the doc and get that MRI SOON! Please take care of yourself and don't worry about getting on the boards ~ geesh! Just take care of yourself first and foremost!! Sending you tons of prayers and positive thoughts for a diagnosis and quick recovery!! :lovey:

:hug2:

[Irishlass]

Fuel, I'm so sorry to hear about your health problems. Prayers are coming your way. Hopefully, you will have some answers soon. While you are waiting here's a big 'ole Irish hug........ (((((Fuel))))).

[TigerLily]

OMG! WOW! I hope they get an MRI as soon as possible and see what exactly is wrong. That's incredible. I'll be sending thoughts and prayers your way. Hugs. TL

[Gabby]

I just wanted to let you know that Fuel saw a doctor and there are a few possible causes of his current condition. He is having an initial MRI today.

He is having a lot of difficulty reading and typing.

Continue to keep him in your thoughts and prayers. I'll be in touch with him via phone.

[Kramer]

Sending you tons of prayers Sam!! Hang in there, I hope you are feeling better soon :hug2:

[babybear]

Fuel:
I'm glad that you are getting an MRI and hope and pray that your health improves quickly

:hug2:

[Roo94]

Gabby:

Thanks for the update. Please send him our love and good wishes! We miss him and hope that they can figure this out soon!

Roo

[Fuel]

Hi! :welcome:

Thanks everyone for your support.

Reading & walking makes me dizzy, and typing with a numb hand is rough. So, I'll keep this breif. I had the MRI this morning. It's just a matter of waiting. If the MRI comes back negative then I should be okay within days (it is just the lingering effects of a migraine), if they find something than it gets ugly. There a boat load of things that could be wrong. Yesterday I saw two neurologists, but they need to see the MRI to really know what is going on but my symptoms mirror a stroke and they have started aspirin therapy just in case. A migraine can apparently can cause one, but it's very rare.

I'll let you when I hear about the MRI, may be as long as Friday.

Take care!

[tcroom134]

Fuel -- I am so sorry to hear about this and hope that you are doing better. You are in my thoughts and I will keep you in my daily prayers. Lots of hugs coming your way from Michigan. :hug2::hug2::hug2::hug2:

[cheddar]

Fuel, I'll be keeping you in my prayers too. I hope your symptoms go away soon. Hang in there!

[Jac-Kuch-ie]

Ditto. I will continue to pray for you! I never realized migraines could cause so many problems. Stay strong.

[lalake]

Fuel, you are in my prayers. Hope you feel better soon! :hug2:

[mel]

Good luck, Fuel. Hang in there!

[LadyD]

Fuel you are in my thoughts and prayers.

[MrWizard]

Hoping the news is good. Thoughts and prayers are with you.

[Slitter]

Hoping you get good news, Fuel. You are in my thoughts. :hug2:

[Jordygirl]

My thoughts and prayers are with you Fuel - I suffered from migranes for a few years - and they are the absolute worst - I would be down for at least 4-5 days - mine were stress related. I hope and pray that you get through this tough time. Best wishes.

[addams]

Fuel I just found this thread and I am sending my prayers and hugs. All of the Addams family sends our prayers. I am so thankful that you were able to get the MRI so quickly. I pray for your full recovery.

Gabby thank you for your updates.

[Fuel]

Bad news! :crying:

Dr wants to see the films from yesterday, but the MRI center's report is prelim MS. The Dr does not agree with the report, he needs to review the film but they indicated that they saw a white matter liason (SP?). I'll probably be admitted to the hospital tomorrow for further testing and IV medication.

Be well my friends.....

[WickedW]

I'm keeping you in thoughts and in my prayers Fuel, hope you get better real soon. We will miss you!

[tcroom129]

I'm sorry to hear tht Fuel! We'll keep praying for you!

[Kramer]

Fuel :hug2: I am so sorry to hear this. I did a lot of reading about MS when my nephew was diagnosed earlier this year. If you want me to send you some links to some information, please let me know. The good news is that if it is indeed MS, you have the potential to have a completely normal lifespan, although the medication schedule you have to follow is going to be quite rigorous. Im so sorry you are dealing with all of this. You and your family are in my thoughts and prayers and if you need to talk, give me a holler.

:hug2:

[toastergnome]

My heart goes out to you, Fuel. You are at the top of my prayer list. (With all these prayers, you should be back on the boards in no time at all!!) Sure do miss you.

[LeeLee]

Fuel,

Hang in there. All your friends are pulling for you.

LL

[AvecLion]

Hey Fuel - you might be away from the boards, but you'll never be far from our hearts. Take care.

[tahitisweetie]

Oh, gosh, Fuel. We're all thinking of you.

[Cygnus]

Fuel, I am so sorry to hear that this is happening to you. I am thinking of you and hope that the news gets better.

[Gabby]

Me, too...I'll try to call you later today.

[frawniemae]

I wish the news was different, Fuel. Prayers and hugs :hug2:

[mel]

Well, honestly- the news could be worse.

MS can be very manageable. I have a cousin who was diagnosed 3 years ago and the first year was horrible for her. But then she changed her diet and lifestyle (she also had all her fillings replaced) and has been symptom free for over a year now.

I'm keeping my fingers crossed that you'll find good treatment and get on with your life in no time.

[Slitter]

Sorry to read the early news, Fuel, but you can see we're all pulling for you. Take care.

[MrsL]

Fuel, may your hospital stay be brief, your diagnosis be accurate, and your heart be comforted knowing that a lot of people are thinking of you and wishing you a speedy recovery. Hang in there.

[lalake]

Fuel, what a lot you have to digest. You are in my prayers. Godspeed.

[Jordygirl]

Hang in there Fuel - we are all praying for you!

[pocket]

I hope the final diagnosis isn't MS. If it is, I hope you get the best advice and treatment available. Hang in there....we're all sending positive hopes and prayers your way.

[Punkin]

Big :hug2:s and :kiss:s, Fuel. :lovey:

[addams]

We are keeping you and your wife and all your doctors and medical personel in our prayers. We are sending you positive thoughts.

[crypto]

Fuel, sorry to hear what has gone on. You and your family will be in my prayers for a speedy recovery.

[Mouse9]

Dearest Fuel,

Dittos of everyone's thoughts and concerns and prayers.

(I haven't been on line much, so missed it before today.) Just wanted to add another friend to the list of those you know are on your side.)

[Gabby]

Monday: 4:00

I just got off the phone with Fuel. He is home from the hospital. He described himself as "stable." He's in the care of some of the country's finest doctors who've run every possible test they can.

He should know something by the end of the week.

Keep him (and his wife) in your prayers!

[addams]

Thank you Gabby. thank goodness the tests are completed and he is home.

Prayers continue to be sent for Fuel and Mrs. Fuel.

[Kramer]

Fuel, you are in my thoughts and prayers!! Feel better soon :hug2:

[Irishlass]

Fuel, prayers and positive thoughts continue to come your way from Indiana. Hang in there and trust that the doctors will have some positive news and a plan of attack by the end of the week. Hugs to you and your wife.

[Slitter]

Thanks for the update, Gabby. I was hoping they'd kick him out today. ;)

You are certainly still in my thoughts and prayers, Fuel. Hang in there.

Go Fuel Go!!!

[Gabby]

I talked to Fuel again today. He's pretty limited in what he can do and tv 24/7 isn't really what it's cracked up to be!

No news. None was expected today. I just thought I'd let you know.

[frawniemae]

Thanks for the update, Gabby.

[Jordygirl]

Thanks Gabby for the updates! Hang in there Fuel -

[lalake]

Maybe one of the Fuels can read him the message boards :).

[Leikela]

Oh Fuel!! This has come as a shock..I hope u are doing well and that things will get better from here..I'm keeping u in my prayers...pls take care..and thanks Gabby for the update, u know it'll worry us sick not to know what was going on...

[tahitisweetie]

Fuel, checking in each day with this thread for updates. You are in my heart and prayers!!!!!

[Elby]

Fuel,

In my self absorbtion I haven't read this thread until now. I'm so sorry and you are now in my thoughts and prayers.

[sarah711]

Fuel my thoughts and prayers are with you and I hope everything gets taken care of ... Thanks Gabby for the update ...Miss you Fuel

[Slitter]

Hey Fuel, Moppy asked me to tell you that she's thinking of you and has absolutely the most positive thoughts beaming your way.

[Gabby]

I have some sad news that I've been asked to pass on.

I spoke to MrsFuel earlier this evening and she let me know that Fuel has received a positive diagnosis for MS. He had another MRI today to help the doctors fully understand the full ramifications of the diagnosis. She knows that they have a tough road ahead and is looking forward to meeting with some support groups.

I also called Fuel at the hospital. He is in the first stages of coping with his diagnosis. From what I understand, his prognosis is not as positive as we all may have hoped -- but the doctors will do everything they can to find the best treatment possible. Fuel said that his condition is compounded by some past medical problems and the MS is very aggressive. He begins taking steroids and will be in the hospital for at least a week. He hopes that he will regain his sight (right now it is limited) and be able to walk without a walker. Fuel did ask about the Finale and we got to laugh together about the “stupid, stupid people.” I promised I would call him tomorrow to read some of the boards to him.

I let MrsFuel know that the SA family was sending a beautiful dish garden. I told her that I was overwhelmed by the response and couldn’t believe the envelopes that had arrived from all over the country! At first, she didn’t quite grasp what I was saying. When I told her that the members of SA had organized a “Fuel Flower Fund” and that the prayers of so many people were with them – she broke down. She said to say “Thank you!”

We have another fight on our hands. I don’t know much about MS – but I hope some of you will help out by finding a way to display our support for Fuel. The flower fund covered the flowers and delivery. I will send anything that hasn’t arrived to the MS Society in Fuel’s name.

[Kramer]

:( Thanks for the update Gabby .... I am so sorry to hear that Fuel has such a tough battle ahead of him....BUT, I know Fuel and he will do his damndest to get through this! So, Fuel, please hang on. The worst is probably immediately to come but once you get into your treatment regiment, I think you will find that you will be back at 'em in no time at all....Im praying for you and sending you a ton of positive healing thoughts!! Hang in there!! You ROCK! ;)

:lovey: Love ya!!

[AvecLion]

Fuel, sorry to hear the diagnosis wasn't what you were hoping for. I wish it could be more, but Kai, J and I will be keeping you in our thoughts.

Gabby, please keep us updated - I tend to view the SA regulars as my extended family - and Fuel is like the older brother I never had.

[Slitter]

I'm also sorry to read that things didn't go the way you hoped Fuel (and MrsFuel). We're all pulling for you though. Hang in there. You are both in my thoughts & prayers.

[cheddar]

I am so sorry to read this news. Fuel, sending prayers and thoughts for you to keep your spirits up and for the doctors to help you with the best treatment. I hope the steroids help you improve quickly.

[lalake]

Fuel, my heart goes out to you. Here is some patented :) lalake therapy [insert real name where it says lalake] but actually an expletive deleted works better. My friends and I call it $%&! therapy.

When something inexplicable like this happens sometimes you just have to yell and scream as loudly as possible 'why me?' and other phrases of the same sort. I know it sounds odd, but it does work. The more yelling the better and it helps to have someone yell with you. Make a lot of noise, even if you have to do it while screaming into a pillow or something.

Next step is to watch/listen to as much comedy as possible. Old Three Stooges and Animal House are highly recommended. Bill Cosby albums with the ones like "Noah and the ark" and the stories about his brother, Russell and Fat Albert are a hoot.

Repeat as often as necessary.

You are in my thoughts and prayers. God speed, Fuel.

[Sheisback]

Sending all the good thoughts and strenghts into Fuel & family direction.

Good luck!

[pocket]

I'm sorry to hear the diagnoses. I hope the treatment the doctors have started will help tremendously, and help you get back to a more manageable state. I don't get to check in here or be as active as I used to be, but I will be checking on this thread, for sure. Our hopes and prayers are with you, and Mrs. Fuel.

[Jordygirl]

Gabby - can you send me info on the "flower fund" for Fuel - I'd like to help out & send my thoughts and prayers as well.

[lalake]

Jordygirl--check your PM's. :)

[rielap]

Wow, I hadn't been over to chit for chat forever and had no idea...

Fuel, I hope you kick MS in the butt. My best wishes that you prove the docs wrong and make great positive strides.

[tcroom134]

Fuel -- Once again I am sending you and Mrs. Fuel my thoughts and prayers. It seems like one of our SA friends is always fighting something and the journey is never short. I hope that you find strength in a higher power to help fight this disease and realize that all of us here are doing our best to support you. Keep on fighting -- we miss you.

[tahitisweetie]

As I sit here with a tear streaming down my check, my children innocently ask me why I am upset about someone I really don't know.

I stopped and thought for a minute. Then I realized ... that is the beauty of this site, isn't it.

We all have an extended group of family and friends that we can turn to in our darkest moments and know that somewhere out there ... at just about any given time ... someone we "don't really know" is thinking about us.

Fuel, you are this site in so many ways. Not just ownership, but a voice. A spoiler opinion. A happy thought in chit chat. Part of the welcoming committee.

God speed. We miss you around here and we hope to see you soon.

[Gabby]

:crying:

Now I'm crying. What a beautiful way to say it! After I spoke to them on Friday, I really felt a need to actually talk to some of you. Fortunately I have the tcrooms, but I'd really wished I'd had more phone numbers.

[Roo94]

Best wishes, prayers and hugs to you in this difficult time Fuel. Please know that we are all here for you...

Gabby - I missed the Flowers for Fuel fund. I would like to make a donation directly to the MS Society in his name. Could you PM me Sam's last name?

Thanks!

Roo

[Jac-Kuch-ie]

I'm sorry, Fuel. You are in my prayers!

[lalake]

I spoke with Fuel today and he said to tell everyone he is doing a bit better. He feels like he is improving and may be able to be back on the boards next weekend.

Today he is having double vision and said his feet were not working very well.

His spirits sounded good. :)

[Gabby]

We back-to-backed our calls!

He did sound a lot better today. He's looking forward to the finale. His mom and wife are there. The flowers/plant arrived yesterday! Hooray!

He said "Rob" immediately. No spoilers. He thinks that game-play is the most important thing to former players.

[WickedW]

Fuel, we are all thinking about you and keeping you in our prayers.

I too missed the Flower fund but I will be going down to the local office of the MS Society here and make a donation on Monday (as I dont know your real name I will just tell them its for a friend that was just diagnosed with MS).

Kinda makes me feel guilty I dont donate to these types of charities more often, and not only because someone I know has the disease.

[Sunburntbeatle]

WOW! I don't have a good excuse for missing this before leaving on vacation. Gabby and/or lalake, please PM me the info on the flower fund. Can we send a card directly to Fuel?

Fuel, you and your wife are in my thoughts and prayers.

[Kramer]

Fuel, I can't wait to see you feeling better and back on the boards!! :lovey:

[Gabby]

The flower fund more than funded the flowers, so I'm sending the remaining money directly to the MS Society.

If you didn't donate to the fund -- please consider sending money to MS.

[toastergnome]

Crap, Fuel, this just plain sucks. There are two very close people in my life that have had MS for over ten years and I have seen first hand the struggle they go through. The road is going to be tough, but the loving support of family and friends helps to smooth it out a bit. Even though I've only "known" you a short time here in this wonderful world of Survivor Addicts it just breaks my heart when I think of what you must be going through.
I am looking forward to seeing you back on the boards!:hug2:

[Gabby]

Tuesday Update:

I just got off the phone with Fuel. He is being moved tomorrow to a hospital closer to home to do some rehab. He expects to be there for about 1-2 weeks. His spirits seemed better and he said that he is feeling a little better each day. He's looking forward to his sight being improved enough to read the boards.

He enjoyed the finale. :) He knew I wouldn't like the "second million" and was surprised at how far in the lead Rupert is in our poll (although not surprised he was winning). He asked about baby Kramer and is anticipating the phone call telling him baby and mommy are doing fine (aren't we all! :D ) He laughed about the "heart tracker" and said that I have carte blanche while he's away. Hmmm...I've always wanted to move things around a little. ;)

I didn't tell him about our ribbons -- I thought I'd let that be a visual surprise!

[Jac-Kuch-ie]

Thanks for the update, Gabby. Glad to hear things are getting a little better!

[tahitisweetie]

Yes, Gabby, thanks for the update.

[Roo94]

Thanks for the update Gabby! Lots of hugs and prayers coming your way Fuel!!!

Roo

edited to add - I tried to follow Cygnus' directions to add the MS ribbon and it didn't work. Can any techies help???

Thanks!

[Sunburntbeatle]

Thanks for keeping us posted Gabby.

[Gabby]

I fixed your ribbon, Roo! :D

[Gabby]

Sunday Afternoon:

Got a call from Fuel. He's doing well at the rehab hospital. It's nice to be closer to home. He's the youngest guy on the floor. :)

They are optimistic that he'll be home by the weekend. He is walking with a walker right now. He sounded good.

Thought you'd all like to know! :D

[frawniemae]

Thanks for another update on fuel! I'm glad to hear he's doing a bit better.:hug2: to you Fuel and Mrs. Fuel.

[Sheisback]

:applaud :)

Great news ! Thanks Gabby for the updates !

[Sunburntbeatle]

Thanks for the update Gabby!

[Jordygirl]

Gabby - I got a message from lalake dated May 1st - due to my ignorance of how extensive this board is - I had no idea I had ability to pms here until today - since my situation happen that same week - I know I missed sending you a check - but what I would like is to send one having it go to the family - to help out with all the daily needs - is that something that we can start? Let me know.

[Slitter]

Thanks for the update, Gabby. I'm glad he'll get to go home soon. As Dorothy says: There's no place like home. Did he say anything about how his vision is doing?

[Kramer]

:clap: Yea!! Keep up the good work Fuel, can't wait to hear you are home and recovering in the comfort of your own pad!! :clap:

[tcroom134]

Keep the spirits strong Fuel -- we are praying for you and keeping you in our thoughts.

[lalake]

Hi Fuel! Glad you are making progress and that you may go home soon!!! Take care and God speed!

[Gabby]

Friday Update:

Fuel is home. Got there around 1:00 today. He is still having a lot of trouble with his vision, so still no SA time. :( He said his coordination has improved and he's getting around better. Unfortunately, he'll be "home-bound" for a while yet.

[frawniemae]

Welcome home fuel! Can't wait for you to be back here with us! You are missed.:hug2:

[WickedW]

Glad you are home Fuel!!! Hope you are well enough to read the boards soon.

[cheddar]

Fuel, happy to read you are home now. I hope your condition will continue to improve and you'll be back at SA soon! Keeping you in my thoughts and prayers.

[Slitter]

Welcome home Fuel! So glad to hear that you are improving and looking to see you back on the boards when you can get here. Take care!

[lalake]

Yea! Home sweet home! No nurses bugging you at odd hours! Glad you are on the mend Fuel. You are missed!

[Irishlass]

It is true, there's no place like home and I'm so glad you are back in yours. I'm so happy to hear you are making progress and hope to see you back on the boards soon.

((((((FUEL))))))

[Fuel]

Hi All! Thanks for youe support.

Mu laezt the vision is poor and my fine motor control is messed up, but at least I' at home. I can get around with a walker and I feel the wotse is over. See you around in a few das.

[frawniemae]

What a great day!! I was so happy to see you on board Fuel!! :clap: :fun2: :yes: Welcome home!!

[rielap]

Welcome home and so nice to see you posting!

[Slitter]

Great to see you made it to the boards today, Fuel! :hug2:

[spf15]

Nice to see you, Fuel

[Irishlass]

WOW, that's the best thing I've seen in a while...........an honest to goodness post from Fuel. :) Welcome back to SA, you have been missed my friend.

[Dr.Death II]

Welcome home, Fuel.

[Sheisback]

Thats great Fuel! I am so glad you are home AND posting ! :)

[lalake]

:wavey: Hi Fuel! Glad you are home and able to read and post!

[Elby]

We have missed you, Fuel. Welcome home!

[Sunburntbeatle]

So glad to know you are at home.

[Jac-Kuch-ie]

Great to see your are back! :hug2:

[tcroom134]

YEAH!!!!!

I am so glad you are home and on the mend. Take care of yourself and you will soon be back to normal.

[toastergnome]

It's so nice to see you back, Fuel. Welcome home.

[tahitisweetie]

Finally a Fuel Fix.

Glad you are home.

[tcroom129]

I'm so glad you are home!

[mel]

I've read through the thread again and I am feeling like I'm missing something...

From the time that Fuel went in until now, it seems like a lot happened. He seemed to deteriorate badly and has recovered to the point of being home. Did something other than the MS diagnosis occur?

[Gabby]

No. Unfortunately, from what I understand, Fuel's MS has been very fast acting and aggressive.

:(

[Crops]

Fuel - my Mom has MS -

It is very common for the initial symptoms of MS to come on very strong - knock you on your ass - you go through every symptom possible in the book - the future looks bleak....

But, after a few months (say 3) it is often the case that MS settles down and goes somewhat dormant (wont get into all the stages/types etc here...)

Important thing to remember - no matter what's going on now - is positive mental attitude! Hard to do, but how you handle these few months can have a huge impact on how MS progresses with you through life.

Know that what you feel now may only be temporary - but no matter what, still believe in who you are and the things you know about yourself.

My Mom was diagnosed when she was 21 years old. She’s 61 now! She lives with me and I know a lot about MS.

If you would like to chat - MSN me or email me at fieldsofcrops@hotmail.com, or my supersecret email crops@shaw.ca – anytime.

Crops
AKA Robert

[Gabby]

FYI:

I spoke to Fuel yesterday (Thursday) and he continues to have improvement in his sight. He's even hoping to take in a movie (or two) over the weekend.

:D

[Slitter]

That's terrific! Have a great time, Fuel! I'm sure you're more than due for a little bit of fun. :)

[JayDee]

Glad things are getting better for you, Fuel! We're thinking of you.

[Fuel]

Hi, things are getting better very slowly. I'm confined to downstairs away from the computer.

Each day is a little better. My vision is still very poor but I can get around with a walker.


Thanks for your con't support!

[cheddar]

Fuel, I surely hope things will continue to improve for you!

I hope you were able to go to the movies. :)

[Fuel]

Hi All, I'm still haghing in there.

[toastergnome]

Hi Fuel! :wavey:

[Kramer]

Fuel, you better still be hanging in there!! We miss you, get well soon!!! :hug2:

[tcroom129]

Glad to see you here Fuel!

[Slitter]

Good to see you, Fuel! I hope you are continuing to improve. :hug2:

[Jordygirl]

Glad to know you are checking in and things are improving. Enjoy your movie.

[pocket]

Good to see you here, Fuel. I hope you continue to improve with time and medical help.

[lalake]

Hi Fuel!! So glad to have you on the boards!!

[Gabby]

Sad news --

I just got a message from MrsFuel...Fuel has had a relapse and had to be rehospitalized. :(

I will try to get in touch with him and give you a more thorough update. I just wanted everyone to know...

[Punkin]

Please let Mrs. Fuel know that we are all praying for her and our sweet Fuel. :crying:

[tahitisweetie]

Oh no. I'll keep him in my thoughts this weekend. Won't be on line again until Monday.

[babybear]

Fuel: My thoughts are with you and the Mrs right now :hug2:

[Gabby]

I just spoke to Fuel.

On Tuesday, he was feeling great. He said he was getting around with just a cane and felt that his MS was going in remission. He woke up the next day with double vision and vertigo. Basically -- he's taken a huge step backward.

He thinks he'll be in the hospital a minimum of 5 days. He may stay at this particular hospital for longer if they have room in their "rehab" -- otherwise he'll be transfered to the one closer to home once he's more stable.

He's not able to watch tv and he's back to relearning the walker. :(

I'll let him know we're all thinking about him.

[TigerLily]

ok, note to everyone - when you're thinking about calling someone DO IT!. Sigh, I was going to call him the other day and was busy. Let him know I'm thinking about him and mrs.

[frawniemae]

I sure hated to come on to this news. I'm still holding out hope for better news next time I check in. Is there anything more we can do, Gabby? Cards, letters, etc.?

[Gabby]

I asked him if he needed anything and he said "not right now."

Anyone have a creative idea for helping fill some of his time?

[Kramer]

Fuel, you continue to be in my thoughts and prayers. Im sorry you had a setback, hang in there!! You can beat this because you ROCK! ;)

:lovey:

[pocket]

Fuel, I'm so sorry to read about your relapse. We're all pulling for you and your docs to get this thing under control. We'd all love to know what we could do to help. If there's an address where we can send cards and notes, you'll get a flood of them.

[Gabby]

PM me for an address. :)

[Slitter]

Originally posted by Gabby
Anyone have a creative idea for helping fill some of his time?

I have been thinking about this. I was really surprised at how much of my own entertainment is visually based. I plan to call the MS Society and see what they have to suggest (I meant to do it today but the afternoon got out of hand - see my Editors post) but one idea is books on tape if he enjoys books. I don't know about where he lives but you can get them from the library here so there's no investment unless he'd have to get a portable tape player. If so, get one with a radio. I don't know if they make them (they should!) but one with buttons for different stations like in the car would be great! His wife could program in the stations and then he could go from music to sports to news/talk or whatever he wants whenever he wants and without having to ask for help every time.

I will try to call the MS Society tomorrow but I am not yet sure how tomorrow will unfold (sorry to be unreliable!). If someone else would also like to try that for ideas, their number is 1-800-344-4867 (1-800-FIGHT MS).

[Fuel]

gi, i'm home. nesrly blimd but home. see ys isoon.

[Gabby]

:hug2:

I miss you, Fuel!

Did you know LCS premieres tonight? You may not be able to see it, but it's something that you should be able to listen to well.

[Kramer]

Fuel, Im glad you are back home and am hoping that you start to feel better soon!! I miss you too!! :hug2:

[spf15]

http://www-3.ibm.com/able/solution_offerings/hprtrial3.html

gives a 30 day free trial to some software that is supposed to make it easier for blind or sight-impaired people to use the computer. Might be worth a try. Hopefully you won't need it in 30 days. (and if you do, the purchase price is pretty reasonable too).

[Slitter]

Welcome home Fuel!

I made those calls this morning. Here are some ideas to help tide you over.

From the MS Society: They have books, including their newletters and information on current research etc. available on tape. They also have a service called Tele-Friend where a volunteer who also has MS will call once a week just to chat and see how things are going. All chapters are a little different but you can call your local chaper for more info. (215) 271-1500 or go to www.pae@nmss.org (http://www.pae@nmss.org) for more info.

The lady I talked with also suggested I contact organizations that offer services to the blind for more ideas. She says to contact the PA Council of the Blind. They can set you up with the state library where you can get books on tape and a free (probably) tape player if you need it all by mail so you don't need to go out and get anything. She says state libraries have HUGE collections available.

She also sent me to another place that does a local broadcast of volunteers reading a bunch of newspapers and magazines and stuff. I figured if they did it here, somebody probably did it there and, sure enough, this guy was able to tell me about it. They send you a special radio that can pick of these broadcasts. Contact them at Associated Services for the Blind (215) 627-0600 or www.asb.org (http://www.asb.org) or send an e-mail to jcorrigan@asb.org for more information.

Also, once you are up and about, he said that a lot of theater groups and movie houses offer audio description services. Thes don't do it for every show so you'd need to call and find out and make whatever arrangements are needed.

I hope some of these ideas are helpful and I also hope only necessary for the short term. Still, might as well use what's available. Once again, welcome home! :hug2:

[lalake]

Hi Fuel! So sorry to hear about the relapse.

Slitter, great job on the suggestions! Libraries have a lot of books on tape --and Fuel, Cracker Barrels may be in your area. They have a book on tape rental program. $3 a week per book a think. You dont even have to take it back to the same Cracker Barrel!

I think watching Last Comic Standing is a good suggestion, too!

Also, PBS may have some good things to listen to. In my area we have had some Tim Janis music and Irish tenors.

[[[[[[[Hugs!!!]]]]]] to you and your family.

[Slitter]

Thanks, Lalake. I think maybe I was a bit blunt in my last message. I tried to think of stuff I did for entertainment and it was mostly visually based stuff. That really surprized me, TTTT. Since I was feeling like I couldn't add anything substantial and because the MS Society suggested contacting the Council for the Blind when I said vision was effected and that you (Fuel) are bored, bored, bored! So that's what I did and just followed it where it led.

I sure didn't mean to sound like I was saying that I figured the vision difficulty would be permanent or anything like that (in fact talking with the MS people gave me a burst of optimism). I just thought that the ideas were worth following up in the short term and perhaps down the road if there are other vision problems now and then.

So, I maybe wasn't real "smooth" with my last post in this thread but I think we should be aware of these services are available and take advantage of them when we need them. I apologize if I sounded too gloomy or anything in my post, that wasn't my intent at all.

[Punkin]

No body here thinks you're gloomy or anything else except concerned for a friend, Slitter sweetie. :lovey: Thanks for taking the time to find such valuable info to help Fuel find a way to avoid boredom when these vision problems occur. You turn your worry over him into positive action, and that's a very good thing. :hug2:

[Gabby]

I just wanted to give another update:

Fuel continues to struggle with a very aggressive case of MS. His current set-back has left him "behind" where he was the last time he came home from the hospital. He is able to function pretty well (sightwise) in the morning, but as he gets tired, the double vision gets worse. He's hoping that in two weeks he'll be back where he was.

He told me that MrsFuel was going to attend an MS support group this week. He wasn't feeling physically ready to go. He has been trying to learn as much as he can about MS.

Keep sending the well wishes and good ideas!! :D

[Slitter]

Go Fuel Go!! :cheer:

I'm sure you are feeling some frustration with all this but remember there's more than a whole squad of cheerleaders here to give you a boost whenever you need it! Or even a :hug2:

:cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:

[Jordygirl]

Hang in there Fuel - take one day at a time. We're all here rooting for you and wishing you the best.

[Jac-Kuch-ie]

I'm sorry to hear about the set-back, fuel. Stay strong and know we all are praying and sending positive thoughts your way. :hug2:

[Fuel]

Thanks for the link, it really helps by this time of day.

I'm doing fair. my vision is onw of the biggest problems then it would be my legs - really weak. See the Doc on Friday. Thanks again for your support, great info Slitter.

[Roo94]

Lots of hugs Fuel! It's nice to "see" you out here. We're all here for you!

Roo

[tcroom134]

Missing you Fuel. I hope that everything continues to improve on a daily basis. Good luck at the doctors!!!

[JayDee]

We're thinking of you and praying for you and your family.

[tcroom129]

Hope the doctor has some great insights and help for you Fuel - we miss you around here!

[Gabby]

Wednesday, 6/16

Just talked to Fuel -- He sounded great! He's looking forward to his doctor's appointment on Friday. Hopefully they'll be doing a change in meds that may help him feel even better.

Everyone :luck:

[Crops]

Can I offer some suggestions?

I currently am living with someone with MS, having left my career on hold while I take care of them. It's my mom. I recently had my sister move in with the idea that I would transition the responsibility for my mom to her, and resume working.

My mom has had ms for over 40 years. Although it was always there when I was younger, it didn't have profound effects on her till say maybe the last 10 years.

My mom has days right now where she can't walk or even sit up. Other days she can climb stairs and get around fairly well. We'll even see changes hourly with her. She has a good hour - she has a bad hour. One thing though that we as a family try not to do is evaluate her on a minite by minite basis. Even a day by day basis is too much for a disease as unpredictable and strange as MS.

I love all this support for Fuel - I love the feedback too. But I would caution the cycle of evaluating his progress on this sort of day by day thing. It gets exhausting and it can be hard on the mind.

I speak of my mom now to people only in generalities. They ask how she's doing all the time - and what I do is take a Macro view as opposed to a Micro view. I say "pretty-good" as opposed to "today was a bad day, but yesterday was good..."This way she's not defined by the state of her disease any given moment.

Fuel - he's in this for the long haul - and as folks who care for him and love him (in that fuzzy message board way) you might want to consider long-term support strategies too.

Anyway - just a few words. Anyone who has any questions about MS or how to help support people with MS is more than welcome to PM me. We could always set up some IM time, as I would be willing to share what I know.

Cheers all and to Fuel.

Crops
AKA Robert

[Jac-Kuch-ie]

I think this it the most personal information you have shared with us, Crops. And I thank you for it. Those of us not touched by this disease can't begin to understand the way it can affect the family members and friends of the person with the diagnosis. You are a good son and I'm sure your mother and your sister appreciate you greatly for your sacrifice and dedication.

[mel]

Originally posted by Jac-Kuch-ie
I think this it the most personal information you have shared with us, Crops.

Well, he has talked about pooing a lot- and that's pretty personal. ;)

Seriously, thank you Crops for your insight. It makes a lot of sense.

[Punkin]

Crops, your Mom is so lucky to have such a caring son that you've put your own life on hold to help her. :hug2::kiss:

I managed a Physical Therapy clinic for ten years, and am aware every day that any one of us is just one "banana peel" away from having our whole life tossed upside-down. For Fuel and so many others it's a disease that comes on unexpectedly. Others may suffer a serious accident. But all of us should thank God that we are healthy while we are, and plan for the day that something unexpected can happen to change our lives or the lives of our loved ones.

[luckyg71]

Hi people. I am sorry to hear about that. The company that i work for sells drugs for ms and other diseases. I hope you start feeling better.

[Fuel]

Thanks Crops for your posts.

Today is odd this morning. I may be relasping - my vision is starting to double and a touch of vertigo. My coordiation is really bad - it has taken a long time to write these few lines.

See you later and thanks for the con't support.

~Sam

[Fuel]

Friday update from Dr;


I am getting better, unsure of the medication to start. Doc going to talk to the MS Specialist at HUP before I start.

My vision is still poor, unable to walk wo a walker, no hearing in the left ear. The folks are Geeks-R-Us are great, moved the computer to first floor.

[Kramer]

Fuel, Im glad you are getting better! Hang in there!! We miss you and are happy to read your updates. Emily says "Hello" and sends her love :lovey:

Thank goodness for the geeks r us people!! :D

[tcroom129]

Glad to hear the appt. went well and look forward to more progress! We sure enjoy seeing you back here!

[Slitter]

Give 'em hell, Fuel! Thanks to "the geeks" from me too! And thatnks to you for the update. I'm thinking of you all the time.

[frawniemae]

It's good to see you around Fuel. I'm thinking of you often and sending good thoughts your way.

[Fuel]

Today's update

Frst, i would like to thank Slitter for the awesome gift of a 4 leaf clover.

Red'd some good news, my insurance will pay the 1,200 for my monthly MS med. But my primary Nero won't perscribe it until he talks to the MS expert out gf town till July 6th. :(

Today the symtoms have't changed. cannot walk without a walker, typing is difficult but it's part of therapy ordered - left side of my body has problems, I have no hearing in my left ear, and my vision is very poor.

[spf15]

Thanks for the update, Fuel. We're thinking of you.

[tahitisweetie]

Always glad to come on board and see a new post from you Fuel.

[Slitter]

I approve of the therapist who ordered you to type!

That's great about the insurance but the expert sure picked a rotten time to go on vacation.

Hang in there! You are more than welcome for the clover. :) Thanks for the update.

[AvecLion]

Good to hear from you Fuel - and hopefully we'll be hearing more, since Slitter has access to these magic clovers - they really work!

Since typing is part of the therapy, is it possible to get someone to read the boards to you so you're not straining your eyes, but you can still come here? Just a thought - if I were closer, I'd volunteer, just so we can keep you here. ;)

Take care!

[Kramer]

:lovey: Fuel, hang in there, things are taking a turn for the better!! :lovey: keep up the good work!!

[Fuel]

Okay, time for more therapy.

I had physical therapy this morning, didn't go so well - I'm exausted from my venture to the phyc doc in the city. The most I walked since April - my Mom took me since driving with double vision is not ideal. My wifre was surprised I didn't take the wheelchair.

The state sent a follow-up to the handicap placaard, I had to call them since I never rec'd one. :confused:

My symptoms are unchanged and it probably will remain that way for a while.

Typing is hard without hand eye coorinatuon. Poor vision doessn't help. Left hand is clumsy.

[pocket]

It's one of those irritating things.....doctors do go on vacation, and they do need them, but it always seems to happen when we need them. I hope they get you on a meds regimen soon.

Does it help any with your vision to close one eye? If the muscles are affected and weak, your eyes probably don't work together properly. Just an idea, that probably doesn't have any merit, but worth a try.

We're still here any time you need to vent, friend.

[Fuel]

Yeah, I close my left eye from time-to-time. The doble evision, in my case, is the eye muscles are weak.

I have an eye patch to wear, but I look like pirate.

[Gabby]

Where the heck is that smilie?

:huh: I'll have to go look for one. Avatar change? ;)

[TigerLily]

Here's one Gabs :)

[Punkin]

:kiss::hug2::kiss::hug2::kiss:
So good to hear from you!

[Gabby]

I hope this works...

[Slitter]

Rats, too late for Pearl Islands! ;)

I can't speak for the others here but I'm not having any trouble deciphering your posts despite a few mispellings here and there. I'd much rather you post and keep us up to date (and have fun on the boards too!) than having you worrying about that little crap!

Sorry that today didn't go so great but tomorrow is another day. One day at a time. I know Moppy has adopted that as a sort of theme and I think it has helped her a lot when the going gets tough.

Hang in there, pal!

[Fuel]

Great avatar Gabby,when are you going to change mine?

Yesterday, I rec'd a call from another MS patient, a drug copany Teva put me in touch with then. It was great to talk with someone and realize their our others that go through a rough patch then things settle down andd life gets back to normal. It could take a year or so.

My vision last night was near nomal, today not so good. In the morning when i get up a game is played, what is different?

[Gabby]

Just making sure you liked it! :)

[Crops]

Fuel.... watch out for the heat. Watch out for over-hot showers too. This really zaps my mom.

[Jordygirl]

Fuel - just glad to see you here - some days are good some are not so good - but keeping up your spirit and reading the love sent to you on this board should help a bit. Hang in there. Praying for you daily.

[pocket]

Crops, is your mother also affected by the cold in winter? My friend was affected by any temperature extremes, but mostly the cold.

[Dr.Death II]

Good to see you back Fuel. Your typing has got better. Hang in there!

[Crops]

She gets cold easily but it's the heat that knocks her out. She almost melts it's so bad

[Crops]

She's doing better these last 2 weeks than she has in a while.... it's been very tough - ever since my dad died 3 years ago - Emotional stress is a big trigger for relapse - you really have to keep the mind strong - it's part of her success the past 40 years. But sometimes you have to go with the flow - follow the river so to speak. I would say that to Fuel right now.... follow the river a bit.... (plus I'm playing poker right now).

[Slitter]

How are things going, Fuel? It's been a long time since you posted here. I'm thinking of you a lot and hoping things are going well for you.

[Fuel]

ah, just recovering from a mild attack, afected my vision & balance.

Typing is a real challange, reading posts is a lot easier. :)

Still can barely walk need the walker, vision is screwy, on the plus side I should start a new medicine, waiting to hear from the dotor.

[Irishlass]

Thanks for the update, I've been thinking about you. I'm glad it is easier for you to read the posts. I hope you get started on the new medicine soon. Keep on postin', we don't care if there are a few mistakes here and there. It is just good to see you here.

[Fuel]

Originally posted by Irishlass
Keep on postin', we don't care if there are a few mistakes here and there.

:rofl:
If you only knew how long to get it close to right.

Thanks for the encouragement ! :D

[pocket]

Hey Fuel.......I hope that doc gets on the ball so you can start feeling better. Sorry to hear you're having trouble posting. I hope that becomes easier for you, too......and soon. We're glad to hear from you when you can write.

I had to laugh at IL's acceptance of "a few mistakes", only because it reminded me of Moppy posting with a wonky keyboard, and the substitutions she needed to make for some letters. Hey, if we can decipher those, we can handle yours!

[lalake]

Hi Fuel, I have my fingers crossed for the specialist's return this week and hope you can get some new meds to help you over the rough patch.

Let us know what descriptions you need for Amazing Race, Big Brother or Last Comic Standing players. The reality TV addiction continues!

[Slitter]

Thanks for filling us in, Fuel. I'm sorry you've had another attack, however mild it was. :(

If it takes too long to get it right, post it a little wrong! We'll figure it out. I think most of us are used to a few typos now and then!

I forget offhand how long that doc was going to be on vacation but I hope s/he gets back soon so you can try out the new meds! And feel free to yell at that clover if it isn't working hard enough for you! ;)

[geezer]

I don't get around here much anymore, I was sorry to read about Fuel's illness. I wish you a strong remission as a cure is not yet known. Good Luck.

[Jordygirl]

Hey Fuel - was glad to see you posting lately. Don't worry about the typos - we all get the message - hang tough and hope the doc gets the new meds for you. Blessings.

[Fuel]

The latest,

My doc, locAL neruo, has deffered to the city doc who won't perscribe anything to he sees me on the 28th. SO, I hope no major attacks occur - it's a long wait,

Over the weekend started to mix in walking with a cane. So, I am getting better just very slow.

Typing is my biggest challange - the coortrdination is rreally bad - my hands don't go where needed :(

[AvecLion]

Originally posted by Fuel
Typing is my biggest challange - the coortrdination is rreally bad - my hands don't go where needed :(

S'OK - most of us here speak fluent typo. ;)

Good to hear from you, Fuel - here's hoping the days fly by until you can see the other doc.

[spf15]

Originally posted by Fuel
Typing is my biggest challange - the coortrdination is rreally bad - my hands don't go where needed :(
As Lion said, we speak typo, and are glad to be hearing from you.

That said, my FIL, who had a stroke, found that he did faster and more accurate typing by typing into a spell-checking word processor with autocompletion (such as Word), and then pasting it into the program he was actually trying to reach.

If it makes your life better, use the tip. If it's more trouble than it's worth, keep the typos coming!

[tahitisweetie]

Good to hear your progress Fuel.

And you still type better that lots on any given day :)

[Slitter]

Congrats on "graduating" to the cane! The 28th sure does seem far away. Any hopes of getting an earlier appt?

I'm so fluent in "typo" I can even write in it! ;) Thanks for the update.

[Mouse9]

Many dittos to the above thoughts. I sometimes don't add because they have said it all. Today, I just wanted you know that I'm praying for you and have thought of you many times. I have always appreciated everything you have done here to make SA the best Survivor site in the world. I will now pray that an earlier appointment will come up.

Thanks for letting us know what's going on. Always glad for an extra brain teaser when it comes to typos.

[Kramer]

Fuel, Im missing you and glad to see your updates!! I hope the month flies by so you can get started on your medication....keep doing well and recovering, no more attacks!! :hug2:

[tcroom134]

Been awhile since I've been here and am glad to see that things seem to be improving (even if it is a little slow). Keep your spirits up -- you are doing great and we are all pulling for you.

[Fuel]

I saw my MS specialist yesterday and some changes are going to be made. He is going to schedule one day a month for 6 months for a treatment of IV Stertiods as an outpatient . I also need to give myself daily injections. I attempted driving and almost give the wife a heart attack, I didn't hit anything although she said I would be better at bumper cars :eek: she took over the car. I think I need drivers ED for practice. I can walk 10 feet without a cane, anything longer I need a cane because I still fell a bit tipsy walking. Typing is still really difficult for me.

I could be out of work till next year, but I'm going to work hard at therapy and try for mid-Sept.

[Punkin]

Hi, sweetie :wavey:

So happy to hear that things are improving. I managed a Physical Therapy clinic for several years. Our therapists could tell within a couple of visits which patients were going to progress quickly and have a good result. Those were the ones who worked through the pain and seriously followed through on thier home program. The others, who employed little effort and obviously didn't follow the exercize program at home, were really a waste of their time and expertise. I know that you'll be one of those motivated patients that the therapists love to work with. You've set a goal for yourself which is good. It's easier to chart your own progress when you have a date to work towards rather than "next year". You know we are all rooting for you. :cheer:

And it really is true: No pain, no gain!

:trip::trip::trip:

[pocket]

I'm glad you've finally seen the MS specialist. I know the wait for this appointment must have been hard. Hopefully we'll be seeing more of you as you start feeling better.

Hint!! Driving isn't a good idea yet. Bumper cars? Yikes!

[mel]

Hang in there, Fuel. You're doing great!

[Fuel]

I forgot the most important point, per the Dr I'm in remission :) just have some riisidual disability that should clear up.

[Punkin]

Remission? Oh yeah, I can see how you'd forget that part. :bonk:





Happy, happy, happy!!!!!!!!!!!

:trip::trip::trip:

[spf15]

Great news.

[tahitisweetie]

Wonderful, Fuel.

[tcroom134]

I am glad that you are on the right road and know that you will be working hard to keep improving!

[Slitter]

Fuel, that is so fantastic! :boogie: :boogie: :boogie:

I'm so glad the appt finally got here and hope that the new meds help those "residuals" clear up quickly! But best of all to be definitely in remission! I can't wait to tell Moppy who asks about you regularly. :)

What a great day for medical news! :D

[WOODTURNER]

SPONTANEOUS AND COMPLETE REMISSION. This is what I want for you. It is a good mantra/affirmation.:lovey:

[frawniemae]

Great news Fuel!

[Slitter]

A day late and a dollar short as usual (forgive me!) but Moppy asked me to tell you that she is very happy for you!

[Fuel]

I saw the local neurologist yesterday he cleared the way for a August 30th return to work. Hopefully I won't have any disability by then. Driving is still "interesting" I think my reflexes are a bit off. I really notice it at highway speed, driving the neighborhood is no problem. So, I couldn’t drive to my client site which is 40 miles away, but I am working on it going for a long drive on Friday to do something with my hair. The attack(s) left behind a lot of white; I will give here a go to paint it something different.

I started to wear normal clothes again, Dockers with a button down shirt, but I had to pull out the “FAT” clothes thanks to months or steroids and being bed ridden for a few weeks.

Now this heat and humidity is a problem, good thing it's going to break Thursday here. I feel very fatigued because of it.

Great to hear that you are keeping in touch with Moppy, I miss seeing her around here.

[tahitisweetie]

Fuel, things definitely seem brighter for you.

That's great news.

Continued good health.

[Gabby]

Oh my -- I have a feeling life will continue to be an adventure.

You should see the mental picture I have of a fat, graying Fuel.

:eek:

I'm really glad to hear you'll be back at work! :D

[Kramer]

Fuel, Im so glad you are in remission and are starting to feel better. Hopefully the meds will work and you will stay in remission for a very long time :hug2: Hang in there and keep doing better, take it one day at a time as you return to work!! :lovey:

[pocket]

In remission and returning to work!! Great news! It's lucky you have fat clothes, too. It sounds like you're all set. Now if you could just get the driving thing down........

[Slitter]

Wow, back to work by the end of the month! That sounds great, Fuel! Congratulations! Too bad about the fat clothes but I imagine you'll get rid of that when you get more active. If you don't, you don't. After all you've been through, I'm sure you'll agree that there are more important things!

I am definitely keeping in touch with Moppy. I'm not sure this is the appropriate thread for this but she has her new laptop but the modem doesn't work! :( The pain in her hip doesn't allow her to sit up at the desktop for more than a short while. I'll be sure to fill her in on your news though. I know she'll be delighted to hear it!

[Fuel]

Yes, I am sure the weight will drop once I become active again. It's kinda a bummer but I've been through a lot. I'll try the distraction method so people won't dwell on my MS or fatness, should I go with red hair or Nakomis's sense of fashion? :eek:

Looking forward to getting back to work, started to re-establish my business contacts to find work. I learned in the past not to depend of work placing me. I have my work cut out for me if I expect to make that drive daily - 40 miles each way.

It looks like I'll miss the August dinner gathering in MI, it would have been neat to make that an annual event perhaps next year. The flight is now cheap with Southwest in our market.

Thanks for the well wishes! :lovey:

[Gabby]

Maybe we'll have to schedule in odd years! :)

I'm still hoping Skupin will do another party.

[Slitter]

Originally posted by Fuel
should I go with red hair or Nakomis's sense of fashion? :eek:

LOL, now they are one and the same thing! To Mohawk or not to Mohawk, that is the question! ;)

[Irishlass]

I'm still catching up on my reading and posting. What I'm reading in this thread has me grinning from ear to ear. :D Remission is the word I've been waiting to read. I'm so happy for you, can't wait to hear what hair color you decide to go with. ;)